Real ALTUVIIO patient and caregiver Derek and his daughter/real ALTUVIIIO patient Brooklynn
“My dad and I do our infusions at home and continue navigating our journeys with hemophilia together.”

Meet Derek and Brooklynn

Derek: “When I was diagnosed with hemophilia as an infant, it came as a complete shock to my parents because we had no family history of it. But when Brooklynn was born in 2007, I had a very strong feeling she would have it, too, especially after my younger sister Courtney was diagnosed. The doctors were doubtful, but a few weeks after she was born, we had her factor levels checked and she was diagnosed with mild hemophilia A.”

Brooklynn: “Growing up, I didn’t notice my hemophilia very much. Since I have mild hemophilia, I didn’t have trouble with bleeds like my dad did when he was a kid. It wasn’t until I got into cheerleading that I realized I needed to take extra precautions. I try to limit my activities and avoid hurting myself when I can. But sometimes that’s hard to do because my coaches don’t always understand how serious hemophilia can be. I do my best to advocate for myself and tell my coaches when I’m hurting.” 

Derek: “Over the years, we’ve both been on a variety of treatments. With the medical advancements I had seen over the years, I hoped for a longer-lasting treatment that would allow me to have more time between infusions. So when my doctor mentioned once-weekly infusions with ALTUVIIIO, my ears perked up. He explained that ALTUVIIIO was shown to have higher-for-longer factor levels in the near-normal to normal range, over 40%, for most of the week. It also showed a 48-hour half-life in adults. I started ALTUVIIIO in July of 2023, just a couple months after Brooklynn and her doctor decided it would be a good fit for her as well.”

Brooklynn: “My dad and I do our infusions at home and continue navigating our journeys with hemophilia together. I like to share my experience because I want to be a role model for my little sisters, who also have hemophilia, and other girls like me. I used to be so scared of hemophilia and of getting infused, but over the years, I’ve learned how to take care of myself. If you have hemophilia, keep standing up for yourself and the people you love. It’s definitely worth it.”

Derek and Brooklynn are promotional speakers compensated by Sanofi. 

Derek: “When I was diagnosed with hemophilia as an infant, it came as a complete shock to my parents because we had no family history of it. But when Brooklynn was born in 2007, I had a very strong feeling she would have it, too, especially after my younger sister Courtney was diagnosed. The doctors were doubtful, but a few weeks after she was born, we had her factor levels checked and she was diagnosed with mild hemophilia A.”

Brooklynn: “Growing up, I didn’t notice my hemophilia very much. Since I have mild hemophilia, I didn’t have trouble with bleeds like my dad did when he was a kid. It wasn’t until I got into cheerleading that I realized I needed to take extra precautions. I try to limit my activities and avoid hurting myself when I can. But sometimes that’s hard to do because my coaches don’t always understand how serious hemophilia can be. I do my best to advocate for myself and tell my coaches when I’m hurting.” 

Derek: “Over the years, we’ve both been on a variety of treatments. With the medical advancements I had seen over the years, I hoped for a longer-lasting treatment that would allow me to have more time between infusions. So when my doctor mentioned once-weekly infusions with ALTUVIIIO, my ears perked up. He explained that ALTUVIIIO was shown to have higher-for-longer factor levels in the near-normal to normal range, over 40%, for most of the week. It also showed a 48-hour half-life in adults. I started ALTUVIIIO in July of 2023, just a couple months after Brooklynn and her doctor decided it would be a good fit for her as well.”

Brooklynn: “My dad and I do our infusions at home and continue navigating our journeys with hemophilia together. I like to share my experience because I want to be a role model for my little sisters, who also have hemophilia, and other girls like me. I used to be so scared of hemophilia and of getting infused, but over the years, I’ve learned how to take care of myself. If you have hemophilia, keep standing up for yourself and the people you love. It’s definitely worth it.”

Derek and Brooklynn are promotional speakers compensated by Sanofi. 

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Join our Peer Program
Are you currently on ALTUVIIIO? Do you want to share your experience with others? This program may be perfect for you.
Are you currently on ALTUVIIIO? Do you want to share your experience with others? This program may be perfect for you.