Meet Allison
“My son, Emilio, was born on April 30, 2009, in Puerto Rico. My pregnancy and delivery were normal, and for months, we had no idea he had a genetic mutation. When he was 10 months old, we took him to the doctor after noticing he had some bruises on his knees from crawling, and he was diagnosed with severe hemophilia.
I was devastated by the sudden diagnosis. I was afraid for Emilio. Those first couple of years were difficult. There were few doctors in Puerto Rico who specialized in hemophilia, and there were so many unknowns. Because we didn’t yet have prophylaxis, we needed to be cautious and protect him from getting hurt.
My husband and I recognized that if we wanted to give Emilio the care he needed, we would have to move to the United States. We sold everything and moved to Tampa, Florida, when Emilio was 4 years old. It was one of the best decisions we ever made for Emilio and his treatment.
When Emilio was 7, he started becoming more active and his doctor had him switch from on-demand to prophylaxis, infusing twice a week. In 2023, I heard about ALTUVIIIO at a hemophilia conference. I remember hearing them talk about longer-lasting factor levels, and I wanted Emilio to have the chance to infuse once weekly. I talked with Emilio’s hematologist about switching, and she agreed it’d be the perfect fit for us. She explained that ALTUVIIIO was shown to have higher-for-longer factor levels for multiple days of the week.
In August of 2023, Emilio began taking ALTUVIIIO. Since starting ALTUVIIIO, he hasn’t had any bleeds. I chose Fridays as his infusion day because he is the most active on weekends. He has a busy schedule, especially now that he has added basketball to his routine, so it’s nice getting some of that time back. I am also grateful for our amazing group of friends and family. It was not easy uprooting our lives and moving, but we have been supported the entire way.”
Allison is a promotional speaker compensated by Sanofi.
“My son, Emilio, was born on April 30, 2009, in Puerto Rico. My pregnancy and delivery were normal, and for months, we had no idea he had a genetic mutation. When he was 10 months old, we took him to the doctor after noticing he had some bruises on his knees from crawling, and he was diagnosed with severe hemophilia.
I was devastated by the sudden diagnosis. I was afraid for Emilio. Those first couple of years were difficult. There were few doctors in Puerto Rico who specialized in hemophilia, and there were so many unknowns. Because we didn’t yet have prophylaxis, we needed to be cautious and protect him from getting hurt.
My husband and I recognized that if we wanted to give Emilio the care he needed, we would have to move to the United States. We sold everything and moved to Tampa, Florida, when Emilio was 4 years old. It was one of the best decisions we ever made for Emilio and his treatment.
When Emilio was 7, he started becoming more active and his doctor had him switch from on-demand to prophylaxis, infusing twice a week. In 2023, I heard about ALTUVIIIO at a hemophilia conference. I remember hearing them talk about longer-lasting factor levels, and I wanted Emilio to have the chance to infuse once weekly. I talked with Emilio’s hematologist about switching, and she agreed it’d be the perfect fit for us. She explained that ALTUVIIIO was shown to have higher-for-longer factor levels for multiple days of the week.
In August of 2023, Emilio began taking ALTUVIIIO. Since starting ALTUVIIIO, he hasn’t had any bleeds. I chose Fridays as his infusion day because he is the most active on weekends. He has a busy schedule, especially now that he has added basketball to his routine, so it’s nice getting some of that time back. I am also grateful for our amazing group of friends and family. It was not easy uprooting our lives and moving, but we have been supported the entire way.”
Allison is a promotional speaker compensated by Sanofi.
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