Meet Brian
"I was never ashamed of my hemophilia. As I grew up, I got more involved in the community, and that helped me embrace hemophilia as part of my identity and put my experience into perspective. Now I think it’s something to be proud of, and there’s still such a need for advocacy. I’m living in Washington, DC, now working as a patient advocate.
I was using factor mimetic treatment to see if it worked for me, but I had to supplement regularly with factor. When I learned about ALTUVIIIO, I was interested because I wanted to use a single product, and it needed to be factor. My doctor recommended that I try ALTUVIIIO because it could keep my factor levels higher for multiple days a week, and I might not need to supplement with a second product in case of breakthrough bleeding.
Because I wasn’t having any significant issues with my previous treatment, people would ask me, “Why switch?” I think it’s okay to feel like a treatment isn’t right for you and to speak up about your options to your doctor; I didn’t feel like my treatment regimen was the best fit for me based on my needs.
Since starting ALTUVIIIO in August 2023, I’m happy to be on one product. Now, I infuse every Tuesday. My once-weekly infusion gives me the coverage I need to help me stay active in the gym and do the things I love, like walking around DC thrifting the perfect vintage T-shirt, or seeing my favorite artists perform—without having to worry about extra doses of factor. I haven’t had any spontaneous bleeds since switching to ALTUVIIIO.
Living with hemophilia and working with the community has only deepened my passion for public health, and I was accepted to grad school to pursue a master’s degree in public health, focusing on health policy. At the end of the day, I want people to know that you are your own best advocate. Hemophilia is not a one-size-fits-all diagnosis, so you are the one most qualified to speak up about your needs!"
Brian is a promotional speaker compensated by Sanofi.
"I was never ashamed of my hemophilia. As I grew up, I got more involved in the community, and that helped me embrace hemophilia as part of my identity and put my experience into perspective. Now I think it’s something to be proud of, and there’s still such a need for advocacy. I’m living in Washington, DC, now working as a patient advocate.
I was using factor mimetic treatment to see if it worked for me, but I had to supplement regularly with factor. When I learned about ALTUVIIIO, I was interested because I wanted to use a single product, and it needed to be factor. My doctor recommended that I try ALTUVIIIO because it could keep my factor levels higher for multiple days a week, and I might not need to supplement with a second product in case of breakthrough bleeding.
Because I wasn’t having any significant issues with my previous treatment, people would ask me, “Why switch?” I think it’s okay to feel like a treatment isn’t right for you and to speak up about your options to your doctor; I didn’t feel like my treatment regimen was the best fit for me based on my needs.
Since starting ALTUVIIIO in August 2023, I’m happy to be on one product. Now, I infuse every Tuesday. My once-weekly infusion gives me the coverage I need to help me stay active in the gym and do the things I love, like walking around DC thrifting the perfect vintage T-shirt, or seeing my favorite artists perform—without having to worry about extra doses of factor. I haven’t had any spontaneous bleeds since switching to ALTUVIIIO.
Living with hemophilia and working with the community has only deepened my passion for public health, and I was accepted to grad school to pursue a master’s degree in public health, focusing on health policy. At the end of the day, I want people to know that you are your own best advocate. Hemophilia is not a one-size-fits-all diagnosis, so you are the one most qualified to speak up about your needs!"
Brian is a promotional speaker compensated by Sanofi.
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