Meet Chayse
“My mom is a spontaneous carrier, so I’m the only one in my family with hemophilia. Growing up, it was easy to get frustrated when something makes you different. But I feel lucky because my family has never made me feel different—this is our normal.
When I was 7, I learned how to self-infuse at a 5-day hemophilia camp, which gave me the confidence to try other new things, like playing music. Now, I’m a professional musician. I compose, record, and perform my own music while teaching others how to use their voices and play guitar, drums, and piano. Expressing myself creatively has been life-changing, even leading me to meet my future wife, Katie.
I heard about ALTUVIIIO from my CoRe, and asked my doctor if it would be right for me. I did some math, and over the last 28 years of using my factor every other day, I’ve stuck myself over 5082 times. That’s 180 times a year, on average. If I have a bleed, then it’s more. If ALTUVIIIO was right for me, that would mean sticking myself as few as 52 times a year. When I realized what that infusion schedule could mean for my daily life, and my veins, I knew I wanted to try ALTUVIIIO. We determined that it was a good fit for me, and I started ALTUVIIIO in January 2024.
I’m still getting used to realizing that I’m getting a full week between infusions. ALTUVIIIO keeping my factor levels higher for longer has changed not only my routine, but my wife’s as well. Not only am I sticking myself fewer times, it’s less worrying about transporting and packing doses of factor while we travel, and less math trying to figure out which days to infuse. Using ALTUVIIIO has simplified my routine, and the peace of mind knowing that I’m covered for longer has made me so happy. I try to enjoy every moment of every day, whether it’s teaching music, performing, playing golf, or watching a movie with my wife for the 18th time.
My hope is that I can encourage other people with hemophilia to feel confident in taking some control over their own healthcare. Finding a treatment plan that is the right fit for you is worth pursuing with your doctor.”
Chayse is a promotional speaker compensated by Sanofi.
“My mom is a spontaneous carrier, so I’m the only one in my family with hemophilia. Growing up, it was easy to get frustrated when something makes you different. But I feel lucky because my family has never made me feel different—this is our normal.
When I was 7, I learned how to self-infuse at a 5-day hemophilia camp, which gave me the confidence to try other new things, like playing music. Now, I’m a professional musician. I compose, record, and perform my own music while teaching others how to use their voices and play guitar, drums, and piano. Expressing myself creatively has been life-changing, even leading me to meet my future wife, Katie.
I heard about ALTUVIIIO from my CoRe, and asked my doctor if it would be right for me. I did some math, and over the last 28 years of using my factor every other day, I’ve stuck myself over 5082 times. That’s 180 times a year, on average. If I have a bleed, then it’s more. If ALTUVIIIO was right for me, that would mean sticking myself as few as 52 times a year. When I realized what that infusion schedule could mean for my daily life, and my veins, I knew I wanted to try ALTUVIIIO. We determined that it was a good fit for me, and I started ALTUVIIIO in January 2024.
I’m still getting used to realizing that I’m getting a full week between infusions. ALTUVIIIO keeping my factor levels higher for longer has changed not only my routine, but my wife’s as well. Not only am I sticking myself fewer times, it’s less worrying about transporting and packing doses of factor while we travel, and less math trying to figure out which days to infuse. Using ALTUVIIIO has simplified my routine, and the peace of mind knowing that I’m covered for longer has made me so happy. I try to enjoy every moment of every day, whether it’s teaching music, performing, playing golf, or watching a movie with my wife for the 18th time.
My hope is that I can encourage other people with hemophilia to feel confident in taking some control over their own healthcare. Finding a treatment plan that is the right fit for you is worth pursuing with your doctor.”
Chayse is a promotional speaker compensated by Sanofi.
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