Hemophilia patient Paxton and his caregiver Jenny
Hemophilia patient Paxton and his caregiver Jenny
“For Paxton, it's great to have the freedom to infuse only once a week.”
Jenny
Jenny
Jenny is Paxton’s mom and caregiver. Paxton is on ALTUVIIIO prophylaxis.
Jenny is Paxton’s mom and caregiver. Paxton is on ALTUVIIIO prophylaxis.

Hear from Jenny

"Paxton is a hard-working eighth grader, a son, a brother, and a big basketball fan. He was diagnosed with hemophilia A immediately after his birth. Since then, I made it my goal to be a positive example for Paxton and to be his fiercest advocate through it all.

As he grew up and had more basketball practice and activities, keeping track of his infusion schedule became a sport in and of itself. We organized Paxton's prophylaxis treatment schedule so that his trough days would fall on "off days," or days when Paxton didn't have an activity. But as time went on, there were fewer and fewer of those days.

Eventually, we became interested in switching to ALTUVIIIO prophylaxis, as it is the only once-weekly prophylaxis Factor VIll replacement therapy.

We worked with Paxton's doctor over a period of a few months to make sure ALTUVIIIO was the right fit for him. Paxton was excited about keeping higher factor levels for longer periods, and fewer infusion days each week meant less time on the calendar and more time for me to drive him all over town for practices.

Today, Paxton and I are happy to share that his new dosing schedule with ALTUVIIIO is working well for him. We chose to infuse every Monday so that we don't have to worry all week about when to schedule "poke days. ”

Paxton and Jenny are promotional speakers compensated by Sanofi and received free product through Sanofi's Patient Support Program.

"Paxton is a hard-working eighth grader, a son, a brother, and a big basketball fan. He was diagnosed with hemophilia A immediately after his birth. Since then, I made it my goal to be a positive example for Paxton and to be his fiercest advocate through it all.

As he grew up and had more basketball practice and activities, keeping track of his infusion schedule became a sport in and of itself. We organized Paxton's prophylaxis treatment schedule so that his trough days would fall on "off days," or days when Paxton didn't have an activity. But as time went on, there were fewer and fewer of those days.

Eventually, we became interested in switching to ALTUVIIIO prophylaxis, as it is the only once-weekly prophylaxis Factor VIll replacement therapy.

We worked with Paxton's doctor over a period of a few months to make sure ALTUVIIIO was the right fit for him. Paxton was excited about keeping higher factor levels for longer periods, and fewer infusion days each week meant less time on the calendar and more time for me to drive him all over town for practices.

Today, Paxton and I are happy to share that his new dosing schedule with ALTUVIIIO is working well for him. We chose to infuse every Monday so that we don't have to worry all week about when to schedule "poke days. ”

Paxton and Jenny are promotional speakers compensated by Sanofi and received free product through Sanofi's Patient Support Program.

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Joey
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Hemophilia patient AJ taking Altuviiio and his caregiver Bonnie
AJ and Bonnie
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Join our Peer Program
Are you currently on ALTUVIIIO? Do you want to share your experience with others? This program may be perfect for you.
Are you currently on ALTUVIIIO? Do you want to share your experience with others? This program may be perfect for you.