“My family has a long history of hemophilia, so when I was born, they had me tested. I grew up with an uncle and older brother who also had severe hemophilia A. We lived in rural Ohio and knew we needed to be cautious but grew up with the same impulses and accidents as a lot of other kids.

In the ’70s and early ’80s our treatment options were limited. My uncle, my brother, and I all contracted HIV and hepatitis C because of the bad blood era. I’ve received treatments for both, and now neither can be detected in my blood.

In 1989, I started on a recombinant factor treatment, and that was the beginning of my prophy journey. It wasn’t everything I was looking for, but after being affected by blood-borne pathogens, I was scared to try new treatments. I infused with the same product for a long time before I was able and willing to ask for something new.

About 13 years ago, something changed for me. I learned about several different hemophilia communities and chapters near where I lived. It was eye-opening to meet people who had similar experiences to the ones I had. It was through the community that I first learned about ALTUVIIIO.

At my next appointment, my doctor confirmed that ALTUVIIIO showed a 48-hour half-life in adults. Together, we decided it was a good treatment option for me, and I started ALTUVIIIO in July 2024. I haven’t experienced any breakthrough bleeds since then.

One of the reasons I switched to ALTUVIIIO is that it’s easier for me to stick to my weekly prophy schedule. When I was on my prior treatment, I was supposed to infuse every 48 hours. With 3 busy kids, it was hard to keep up with that infusion schedule. Finding a treatment that allowed me to spend more time with my family doing the things that I love makes me feel empowered.”

Mickey is a promotional speaker compensated by Sanofi. Peer stories based on data collected March 2026.

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