
Meet Derek and Brooklynn
Derek: “When I was diagnosed with hemophilia as an infant, it came as a complete shock to my parents because we had no family history of it. But when Brooklynn was born in 2007, I had a very strong feeling she would have it, too, especially after my younger sister Courtney was diagnosed. The doctors were doubtful, but a few weeks after she was born, we had her factor levels checked and she was diagnosed with mild hemophilia A.”
Brooklynn: “Growing up, I didn’t notice my hemophilia very much. Since I have mild hemophilia, I didn’t have trouble with bleeds like my dad did when he was a kid. It wasn’t until I got into cheerleading that I realized I needed to take extra precautions. I try to limit my activities and avoid hurting myself when I can. But sometimes that’s hard to do because my coaches don’t always understand how serious hemophilia can be. I do my best to advocate for myself and tell my coaches when I’m hurting.”
Derek: “Over the years, we’ve both been on a variety of treatments. With the medical advancements I had seen over the years, I hoped for a longer-lasting treatment that would allow me to have more time between infusions. So when my doctor mentioned once-weekly infusions with ALTUVIIIO, my ears perked up. He explained that ALTUVIIIO was shown to have higher-for-longer factor levels in the near-normal to normal range, over 40%, for most of the week. It also showed a 48-hour half-life in adults. I started ALTUVIIIO in July of 2023, just a couple months after Brooklynn and her doctor decided it would be a good fit for her as well.”
Brooklynn: “My dad and I do our infusions at home and continue navigating our journeys with hemophilia together. I like to share my experience because I want to be a role model for my little sisters, who also have hemophilia, and other girls like me. I used to be so scared of hemophilia and of getting infused, but over the years, I’ve learned how to take care of myself. If you have hemophilia, keep standing up for yourself and the people you love. It’s definitely worth it.”
Derek and Brooklynn are promotional speakers compensated by Sanofi. Peer stories based on data collected March 2026.
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ALTUVIIIO® [antihemophilic factor (recombinant), Fc-VWF-XTEN fusion protein-ehtl] is an injectable medicine that is used to control and reduce the number of bleeding episodes in people with hemophilia A (congenital Factor VIII deficiency).
Your healthcare provider may give you ALTUVIIIO when you have surgery.
What is the most important information I need to know about ALTUVIIIO?
Do not attempt to give yourself an injection unless you have been taught how by your healthcare provider or hemophilia center. You must carefully follow your healthcare provider’s instructions regarding the dose and schedule for injecting ALTUVIIIO so that your treatment will work best for you.
Who should not use ALTUVIIIO?
You should not use ALTUVIIIO if you have had an allergic reaction to it in the past.
What should I tell my healthcare provider before using ALTUVIIIO?
Tell your healthcare provider if you have had any medical problems, take any medications, including prescription and non-prescription medicines, supplements, or herbal medicines, are breastfeeding, or are pregnant or planning to become pregnant.
What are the possible side effects of ALTUVIIIO?
You can have an allergic reaction to ALTUVIIIO. Call your healthcare provider or emergency department right away if you have any of the following symptoms: difficulty breathing, chest tightness, swelling of the face, rash, or hives.
Your body can also make antibodies called “inhibitors” against ALTUVIIIO. This can stop ALTUVIIIO from working properly. Your healthcare provider may give you blood tests to check for inhibitors.
The common side effects of ALTUVIIIO are headache and joint pain.
These are not the only possible side effects of ALTUVIIIO. Tell your healthcare provider about any side effect that bothers you or does not go away.
Please see full Prescribing Information.
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