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Meet Tommy
“I was born in a very small town in Texas. When I was 6, I was diagnosed with mild hemophilia after my cousin was tested at birth in a much bigger city. Living in a rural area, my parents and I needed to be knowledgeable about my bleeding disorder so we could educate our community about my needs and limitations.
I’ve been on a variety of treatments over the years to help me manage my bleeds, but I still didn’t feel like I had the protection I needed and wanted. Because of all the untreated bleeds I had when I was younger, my pain levels were starting to become problematic. I knew something needed to change. I had heard that a lot of people on prophylaxis have experienced a reduction in pain. With all my breakthrough bleeds and high pain levels, I thought I should talk to my doctor about switching to a prophy treatment.
As a big science nerd, I had been reading about ALTUVIIIO and how it was shown to have higher-for-longer factor levels in the near-normal to normal range, over 40%, for most of the week in adults. While I liked the on-demand data, I was more intrigued by the results of treating prophylactically.
I switched from on demand to prophylaxis treatment for the first time in my life at the age of 40 in 2023 when I started on ALTUVIIIO. I’ve found that infusing once a week isn’t all that difficult for me. I infuse on Tuesday, and even though I take my time, it only takes 6 or 7 minutes. Plus, I have fewer bleeds and I feel like I have less pain in my joints. Of course, this is my experience, and others’ may be different.
I'm an outdoorsman, so my joint health is especially important to me. For years, I’ve hiked in the mountains to go elk hunting, carrying a 40- to 60-pound pack 4 miles there and back. I’m thankful I’m now treating prophylactically because it gives me extra protection that I haven’t had for most of my life.
I know there are a lot of people with mild hemophilia who may have never considered going on prophylaxis. I know the switch from on demand can seem a bit daunting. I'm a firm believer that the chance of reducing breakthrough bleeds and the potential joint pain and damage that come from them is worth the change in routine.”
Tommy is a promotional speaker compensated by Sanofi. Peer stories based on data collected March 2026.
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ALTUVIIIO® [antihemophilic factor (recombinant), Fc-VWF-XTEN fusion protein-ehtl] is an injectable medicine that is used to control and reduce the number of bleeding episodes in people with hemophilia A (congenital Factor VIII deficiency).
Your healthcare provider may give you ALTUVIIIO when you have surgery.
What is the most important information I need to know about ALTUVIIIO?
Do not attempt to give yourself an injection unless you have been taught how by your healthcare provider or hemophilia center. You must carefully follow your healthcare provider’s instructions regarding the dose and schedule for injecting ALTUVIIIO so that your treatment will work best for you.
Who should not use ALTUVIIIO?
You should not use ALTUVIIIO if you have had an allergic reaction to it in the past.
What should I tell my healthcare provider before using ALTUVIIIO?
Tell your healthcare provider if you have had any medical problems, take any medications, including prescription and non-prescription medicines, supplements, or herbal medicines, are breastfeeding, or are pregnant or planning to become pregnant.
What are the possible side effects of ALTUVIIIO?
You can have an allergic reaction to ALTUVIIIO. Call your healthcare provider or emergency department right away if you have any of the following symptoms: difficulty breathing, chest tightness, swelling of the face, rash, or hives.
Your body can also make antibodies called “inhibitors” against ALTUVIIIO. This can stop ALTUVIIIO from working properly. Your healthcare provider may give you blood tests to check for inhibitors.
The common side effects of ALTUVIIIO are headache and joint pain.
These are not the only possible side effects of ALTUVIIIO. Tell your healthcare provider about any side effect that bothers you or does not go away.
Please see full Prescribing Information.
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