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Meet Allison and Emilio
Allison: “My son, Emilio, was born in Puerto Rico. When he was 10 months old, we took him to the doctor after noticing he had some bruises on his knees from crawling, and he was diagnosed with severe hemophilia.
Those first couple of years were difficult. There were few doctors in Puerto Rico who specialized in hemophilia, and there were so many unknowns. My husband and I recognized that if we wanted to give Emilio the care he needed, we would have to move to the United States. We sold everything and moved to Tampa, Florida, when Emilio was 4 years old. It was one of the best decisions we ever made for Emilio and his treatment.”
Emilio: “When I was 7, I became more active and started participating in swimming leagues. At that time, my doctor had me switch from on-demand factor to prophy. I’ve been involved in the infusion process since I was 10. At first, I would push the medicine and remove the needle. I got more education and confidence about my hemophilia and treatment by going to camps for bleeding disorders. And when I was 13, I learned to infuse on my own. Then I became a helper at the camp and showed the younger kids how to infuse.”
Allison: “In 2023, I heard about ALTUVIIIO at a hemophilia conference. I remember hearing them talk about longer-lasting factor levels, and I wanted Emilio to have the chance to infuse once weekly. I talked with Emilio’s hematologist about switching, and she agreed it’d be the perfect fit for us. She explained that ALTUVIIIO was shown to have higher-for-longer factor levels for multiple days of the week.”
Emilio: “In August of 2023, I began taking ALTUVIIIO. I infuse once a week. Since starting ALTUVIIIO, I haven’t had any bleeds, and my trough level on Day 7 is 6.8%.”
Allison: “We chose Fridays as his infusion day because he is the most active on weekends, so it’s nice getting some of that time back. I am also grateful for our amazing group of friends and family. It was not easy uprooting our lives and moving, but we have been supported the entire way.”
Allison and Emilio are promotional speakers compensated by Sanofi. Peer stories based on data collected March 2026.
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ALTUVIIIO® [antihemophilic factor (recombinant), Fc-VWF-XTEN fusion protein-ehtl] is an injectable medicine that is used to control and reduce the number of bleeding episodes in people with hemophilia A (congenital Factor VIII deficiency).
Your healthcare provider may give you ALTUVIIIO when you have surgery.
What is the most important information I need to know about ALTUVIIIO?
Do not attempt to give yourself an injection unless you have been taught how by your healthcare provider or hemophilia center. You must carefully follow your healthcare provider’s instructions regarding the dose and schedule for injecting ALTUVIIIO so that your treatment will work best for you.
Who should not use ALTUVIIIO?
You should not use ALTUVIIIO if you have had an allergic reaction to it in the past.
What should I tell my healthcare provider before using ALTUVIIIO?
Tell your healthcare provider if you have had any medical problems, take any medications, including prescription and non-prescription medicines, supplements, or herbal medicines, are breastfeeding, or are pregnant or planning to become pregnant.
What are the possible side effects of ALTUVIIIO?
You can have an allergic reaction to ALTUVIIIO. Call your healthcare provider or emergency department right away if you have any of the following symptoms: difficulty breathing, chest tightness, swelling of the face, rash, or hives.
Your body can also make antibodies called “inhibitors” against ALTUVIIIO. This can stop ALTUVIIIO from working properly. Your healthcare provider may give you blood tests to check for inhibitors.
The common side effects of ALTUVIIIO are headache and joint pain.
These are not the only possible side effects of ALTUVIIIO. Tell your healthcare provider about any side effect that bothers you or does not go away.
Please see full Prescribing Information.
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